1. The problem In the “Report on childhood and adolescence condition, Veneto 2006” we find a punctual description of a multidimensional phenomenon: the condition of children with severe and profound disabilities. At the present time, we note an high fragmentation of assistential nets, and it’s urgent to project and to organize individual care process, originated through the involvement of different actors: services, clients, carers, community. The project aims to know and understand perceptions and feelings of families about their caring process, in order to plan with them an early care model. The specific objectives are: 1. to know the care experiences of children and their families; 2. to find how professionals work with families; 3. to outline a new care model based also on suggestions belonging from families. 2. Methodology and instruments The research is divided into 2 parts: 1) the first: during a qualitative part data were collected by:  Semi-structured interviews with families;  Focus group with social workers to reflect upon families’ experiences and needs, and upon social service organization to detect strong and weak points. 2) the second: during a quantitative examination we used the following evaluation instruments (Fond. Zancan, 2005):  the subjects and resources map;  the Index of Care Coverage (ICA);  the Level of Protection in Life Space (LDP).
Caldin R., Milani P., Visentin S. (2008). Pluridisabled Child and his/her family in care. PADOVA : Fondazione "Emanuela Zancan".
Pluridisabled Child and his/her family in care
CALDIN, ROBERTA;
2008
Abstract
1. The problem In the “Report on childhood and adolescence condition, Veneto 2006” we find a punctual description of a multidimensional phenomenon: the condition of children with severe and profound disabilities. At the present time, we note an high fragmentation of assistential nets, and it’s urgent to project and to organize individual care process, originated through the involvement of different actors: services, clients, carers, community. The project aims to know and understand perceptions and feelings of families about their caring process, in order to plan with them an early care model. The specific objectives are: 1. to know the care experiences of children and their families; 2. to find how professionals work with families; 3. to outline a new care model based also on suggestions belonging from families. 2. Methodology and instruments The research is divided into 2 parts: 1) the first: during a qualitative part data were collected by: Semi-structured interviews with families; Focus group with social workers to reflect upon families’ experiences and needs, and upon social service organization to detect strong and weak points. 2) the second: during a quantitative examination we used the following evaluation instruments (Fond. Zancan, 2005): the subjects and resources map; the Index of Care Coverage (ICA); the Level of Protection in Life Space (LDP).I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
