As the impact of breast cancer (BC) risk assessment in asymptomatic women with a family history of BC had never been explored in Italy, we performed a study on a retrospective series of women who had undergone BC risk assessment. To this aim, a semi-structured telephone interview was administered to 82 women. Most participants considered the information received as clear (96.2 %) and helpful (76.8 %). Thirty-eight (46.3 %) stated that their perceived risk of BC had changed after the counseling: for 40.2 % it had decreased, for 6.1 % increased; however, women highly overestimating their risk at the baseline (≥4-fold) failed to show improvements in risk perception accuracy. Sixty-six women (80.5 %) stated they had followed the recommended surveillance, while 19.5 % had not, mainly due to difficulties in arranging examinations. Most women (89.0 %) had shared the information with their relatives, with 57.3 % reporting other family members had undertaken the recommended surveillance. BC risk assessment was associated with high rates of satisfaction and had a favorable impact on risk perception in a subgroup of women. The impact on surveillance adhesion extended to relatives. Organized programs for identification and surveillance may help identify a larger fraction of at-risk women and overcome the reported difficulties in arranging surveillance.

Godino, L., Razzaboni, E., Bianconi, M., Turchetti, D. (2016). Impact of Genetic Counseling in Women with a Family History of Breast Cancer in Italy. JOURNAL OF GENETIC COUNSELING, 25(2), 405-411 [10.1007/s10897-015-9884-y].

Impact of Genetic Counseling in Women with a Family History of Breast Cancer in Italy

Godino, Lea;TURCHETTI, DANIELA
2016

Abstract

As the impact of breast cancer (BC) risk assessment in asymptomatic women with a family history of BC had never been explored in Italy, we performed a study on a retrospective series of women who had undergone BC risk assessment. To this aim, a semi-structured telephone interview was administered to 82 women. Most participants considered the information received as clear (96.2 %) and helpful (76.8 %). Thirty-eight (46.3 %) stated that their perceived risk of BC had changed after the counseling: for 40.2 % it had decreased, for 6.1 % increased; however, women highly overestimating their risk at the baseline (≥4-fold) failed to show improvements in risk perception accuracy. Sixty-six women (80.5 %) stated they had followed the recommended surveillance, while 19.5 % had not, mainly due to difficulties in arranging examinations. Most women (89.0 %) had shared the information with their relatives, with 57.3 % reporting other family members had undertaken the recommended surveillance. BC risk assessment was associated with high rates of satisfaction and had a favorable impact on risk perception in a subgroup of women. The impact on surveillance adhesion extended to relatives. Organized programs for identification and surveillance may help identify a larger fraction of at-risk women and overcome the reported difficulties in arranging surveillance.
2016
Godino, L., Razzaboni, E., Bianconi, M., Turchetti, D. (2016). Impact of Genetic Counseling in Women with a Family History of Breast Cancer in Italy. JOURNAL OF GENETIC COUNSELING, 25(2), 405-411 [10.1007/s10897-015-9884-y].
Godino, Lea; Razzaboni, Elisabetta; Bianconi, Margherita; Turchetti, Daniela
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Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11585/553011
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