Objective: To illustrate reasons reported by kids for having “some”/“a lot of” troubles in each domain of the current Italian EQ-5D(Child) Version. Method: 415 participants (age: 8-15) were asked to explain why they reported having “some”/“a lot of” troubles in each domain, by means of open-answer questions. Statistically based lexical analyses where applied on the whole textual corpus drawn from open-answers. Results: Preliminary content analysis shows that difficulties with mobility (6.5% of the sample) frequently deal with physical impairments and injuries (e.g. pain to leg/feet, sprains). Difficulties with self-care (4.3%) are: stable physical/mental disabilities, but also not liking it, tiredness, being still incapable to dress and wash without parents' help. Difficulties concerning everyday activities (15.8%) deal with tiredness or stress due to overload of engagements, less frequently with pain (e.g., back-pain). Kids reporting ain/discomfort (39.0%) frequently complain with pain to back, stomach, head, arms or legs, pain/discomfort related to sport exercise (pain to muscles). The most frequent reasons for being orried/sad/unhappy (39.0%) deal with friends or family (e.g., because of sick or dead friends/relatives), school or competitions, physical impairments (e.g. back pain). Multiple correspondence analysis gives rise to a two-factors solution, whose first factor shows an opposition between words related to the domain 5 (psychological suffering) vs. all the other domains, in particular words related to domain 1 (physical impairments thwarting mobility), whereas the second factor discriminates between causes of difficulties at domain 2 (mental or physical disabilities) vs. domain 4 (head-ache, stomach-ache, localize pain). Conclusion: Results show that the current version of EQ-5D(Child) profile captures a variety of semantic fields related to children's well-being, discriminating in particular between social/relational vs. physical aspects of QoL. Analysis of open-answers appears to be an helpful tool in the validation and cross-cultural adaptation procedure of instruments for the assessment of QoL in paediatric populations.
Tomasetto C., Matteucci M.C., Selleri P., Cavrini G., Pacelli B., Broccoli S., et al. (2007). LEXICAL ANALYSES OF OPEN ANSWERS IN THE VALIDATION PROCEDURE OF THE ITALIAN EQ-5D(CHILD) VERSION. THE HAGUE : s.n.
LEXICAL ANALYSES OF OPEN ANSWERS IN THE VALIDATION PROCEDURE OF THE ITALIAN EQ-5D(CHILD) VERSION
TOMASETTO, CARLO;MATTEUCCI, MARIA CRISTINA;SELLERI, PATRIZIA;CAVRINI, GIULIA;BROCCOLI, SERENA;
2007
Abstract
Objective: To illustrate reasons reported by kids for having “some”/“a lot of” troubles in each domain of the current Italian EQ-5D(Child) Version. Method: 415 participants (age: 8-15) were asked to explain why they reported having “some”/“a lot of” troubles in each domain, by means of open-answer questions. Statistically based lexical analyses where applied on the whole textual corpus drawn from open-answers. Results: Preliminary content analysis shows that difficulties with mobility (6.5% of the sample) frequently deal with physical impairments and injuries (e.g. pain to leg/feet, sprains). Difficulties with self-care (4.3%) are: stable physical/mental disabilities, but also not liking it, tiredness, being still incapable to dress and wash without parents' help. Difficulties concerning everyday activities (15.8%) deal with tiredness or stress due to overload of engagements, less frequently with pain (e.g., back-pain). Kids reporting ain/discomfort (39.0%) frequently complain with pain to back, stomach, head, arms or legs, pain/discomfort related to sport exercise (pain to muscles). The most frequent reasons for being orried/sad/unhappy (39.0%) deal with friends or family (e.g., because of sick or dead friends/relatives), school or competitions, physical impairments (e.g. back pain). Multiple correspondence analysis gives rise to a two-factors solution, whose first factor shows an opposition between words related to the domain 5 (psychological suffering) vs. all the other domains, in particular words related to domain 1 (physical impairments thwarting mobility), whereas the second factor discriminates between causes of difficulties at domain 2 (mental or physical disabilities) vs. domain 4 (head-ache, stomach-ache, localize pain). Conclusion: Results show that the current version of EQ-5D(Child) profile captures a variety of semantic fields related to children's well-being, discriminating in particular between social/relational vs. physical aspects of QoL. Analysis of open-answers appears to be an helpful tool in the validation and cross-cultural adaptation procedure of instruments for the assessment of QoL in paediatric populations.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione.
