Multiple sclerosis (MS) is the most common cause of progressive neurological disability in young adults. The use of advance care planning (ACP) for people with progressive MS (pwPMS) remains limited. The ConCure-SM project aims to assess the effectiveness of a structured ACP intervention for pwPMS. The intervention consists of a training programme on ACP for healthcare professionals caring for pwPMS, and a booklet to be used during the ACP conversation. Herein, we describe the first two project phases.
Study protocol on advance care planning in multiple sclerosis (ConCure-SM): intervention construction and multicentre feasibility trial / De Panfilis, Ludovica; Veronese, Simone; Bruzzone, Michela; Cascioli, Marta; Gajofatto, Alberto; Grasso, Maria Grazia; Kruger, Paola; Lugaresi, Alessandra; Manson, Leigh; Montepietra, Sara; Patti, Francesco; Pucci, Eugenio; Solaro, Claudio; Giordano, Andrea; Solari, Alessandra. - In: BMJ OPEN. - ISSN 2044-6055. - ELETTRONICO. - 11:8(2021), pp. e052012.1-e052012.12. [10.1136/bmjopen-2021-052012]
Study protocol on advance care planning in multiple sclerosis (ConCure-SM): intervention construction and multicentre feasibility trial
De Panfilis, Ludovica;Veronese, Simone;Lugaresi, AlessandraWriting – Review & Editing
;
2021
Abstract
Multiple sclerosis (MS) is the most common cause of progressive neurological disability in young adults. The use of advance care planning (ACP) for people with progressive MS (pwPMS) remains limited. The ConCure-SM project aims to assess the effectiveness of a structured ACP intervention for pwPMS. The intervention consists of a training programme on ACP for healthcare professionals caring for pwPMS, and a booklet to be used during the ACP conversation. Herein, we describe the first two project phases.| File | Dimensione | Formato | |
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