The PROCLIPI international registry of early-stage mycosis fungoides identifies substantial diagnostic delay in most patients

Scarisbrick, J J; Quaglino, P; Prince, H M; Papadavid, E; Hodak, E; Bagot, M; Servitje, O; Berti, E; Ortiz-Romero, P; Stadler, R; Patsatsi, A; Knobler, R; Guenova, E; Child, F; Whittaker, S; Nikolaou, V; Tomasini, C; Amitay, I; Prag Naveh, H; Ram-Wolff, C; Battistella, M; Alberti-Violetti, S; Stranzenbach, R; Gargallo, V; Muniesa, C; Koletsa, T; Jonak, C; Porkert, S; Mitteldorf, C; Estrach, T; Combalia, A; Marschalko, M; Csomor, J; Szepesi, A; Cozzio, A; Dummer, R; Pimpinelli, N; Grandi, V; Beylot-Barry, M; Pham-Ledard, A; Wobser, M; Geissinger, E; Wehkamp, U; Weichenthal, M; Cowan, R; Parry, E; Harris, J; Wachsmuth, R; Turner, D; Bates, A; Healy, E; Trautinger, F; Latzka, J; Yoo, J; Vydianath, B; Amel-Kashipaz, R; Marinos, L; Oikonomidi, A; Stratigos, A; Vignon-Pennamen, M-D; Battistella, M; Climent, F; Gonzalez-Barca, E; Georgiou, E; Senetta, R; Zinzani, P; Vakeva, L; Ranki, A; Busschots, A-M; Hauben, E; Bervoets, A; Woei-A-Jin, F J S H; Matin, R; Collins, G; Weatherhead, S; Frew, J; Bayne, M; Dunnill, G; Mckay, P; Arumainathan, A; Azurdia, R; Benstead, K; Twigger, R; Rieger, K; Brown, R; Sanches, J A; Miyashiro, D; Akilov, O; Mccann, S; Sahi, H; Damasco, F M; Querfeld, C; Folkes, A; Bur, C; Klemke, C-D; Enz, P; Pujol, R; Quint, K; Geskin, L; Hong, E; Evison, F; Vermeer, M; Cerroni, L; Kempf, W; Kim, Y; Willemze, R

doi:10.1111/bjd.17258

Survival in mycosis fungoides (MF) is varied and may be poor. The PROCLIPI (PROspective Cutaneous Lymphoma International Prognostic Index) study is a web-based data collection system for early-stage MF with legal data-sharing agreements permitting international collaboration in a rare cancer with complex pathology. Clinicopathological data must be 100% complete and in-built intelligence in the database system ensures accurate staging.

The PROCLIPI international registry of early-stage mycosis fungoides identifies substantial diagnostic delay in most patients / Scarisbrick, J J; Quaglino, P; Prince, H M; Papadavid, E; Hodak, E; Bagot, M; Servitje, O; Berti, E; Ortiz-Romero, P; Stadler, R; Patsatsi, A; Knobler, R; Guenova, E; Child, F; Whittaker, S; Nikolaou, V; Tomasini, C; Amitay, I; Prag Naveh, H; Ram-Wolff, C; Battistella, M; Alberti-Violetti, S; Stranzenbach, R; Gargallo, V; Muniesa, C; Koletsa, T; Jonak, C; Porkert, S; Mitteldorf, C; Estrach, T; Combalia, A; Marschalko, M; Csomor, J; Szepesi, A; Cozzio, A; Dummer, R; Pimpinelli, N; Grandi, V; Beylot-Barry, M; Pham-Ledard, A; Wobser, M; Geissinger, E; Wehkamp, U; Weichenthal, M; Cowan, R; Parry, E; Harris, J; Wachsmuth, R; Turner, D; Bates, A; Healy, E; Trautinger, F; Latzka, J; Yoo, J; Vydianath, B; Amel-Kashipaz, R; Marinos, L; Oikonomidi, A; Stratigos, A; Vignon-Pennamen, M-D; Battistella, M; Climent, F; Gonzalez-Barca, E; Georgiou, E; Senetta, R; Zinzani, P; Vakeva, L; Ranki, A; Busschots, A-M; Hauben, E; Bervoets, A; Woei-A-Jin, F J S H; Matin, R; Collins, G; Weatherhead, S; Frew, J; Bayne, M; Dunnill, G; McKay, P; Arumainathan, A; Azurdia, R; Benstead, K; Twigger, R; Rieger, K; Brown, R; Sanches, J A; Miyashiro, D; Akilov, O; McCann, S; Sahi, H; Damasco, F M; Querfeld, C; Folkes, A; Bur, C; Klemke, C-D; Enz, P; Pujol, R; Quint, K; Geskin, L; Hong, E; Evison, F; Vermeer, M; Cerroni, L; Kempf, W; Kim, Y; Willemze, R. - In: BRITISH JOURNAL OF DERMATOLOGY. - ISSN 0007-0963. - ELETTRONICO. - 181:2(2019), pp. 350-357. [10.1111/bjd.17258]