How" good" a healthcare professional should be? An empirical study on the acquired and required psychosocial competences for comprehensive haemophilia care.

Introduction and Objective: The comprehensive care (CC) model promoted by the WFH is nowadays widely acknowledged, although its actual implementation is subject to considerable variations among Countries and/or Centres, due to socio-cultural aspects and resources availability. In this framework, healthcare professionals (HCPs) are asked to acquire psychosocial competences, which are transversal to various professions, but are also expressed and contextualised depending on the professional specificities and circumstances. This study, which is part of a two-year research project, aims to identify and describe such non-technical competences in relation to five major domains that a previous study recognised as representative of HCPs’ experiences in working with haemophilia: dealing with policies, resources and stakeholders in the local care system; challenges when caring for impaired adult PWHs; diagnosis and counselling about reproductive choices; challenges when coping with adolescent PWHs; considering the impact of family dynamics. Materials and Methods: Structured interviews with haemophilia HCPs, people with haemophilia (PWHs) and their family members, from seven different countries, were content analysed. Technical and non-technical competences and needs associated with different actors (i.e. HCPs, PWHs, family members) in the five domains were coded. Details about the interviewee (i.e. role, Country) were also considered in order to reflect on cultural and organisational specificities. Results: The triangulation between the perspectives of the main actors involved in haemophilia care led to the identification of relevant needs and cross-professional and non-technical competences supporting the CC model. The representation of HCPs’ work will be described through the identification of the challenges to be addressed and the competences to be developed in each domain, introducing some reflections about how professional and cultural specificities may affect the CC model. Conclusions: Overall, this research project contributes to improve knowledge and awareness of the different psychosocial aspects that the CC model requires to be fully achieved. Such knowledge can be integrated in research designs and can become the basis for further developments in interventions (e.g. training paths, work organisation in haemophilia CC centres) It can also be used for constructing a cross-professional and cross-national “core curriculum” in order to promote CC in haemophilia.